Jean Phillips-Martinsson

Jean Phillips-Martinsson
Born
Jean Phillips

(1930-04-11)11 April 1930
Died28 September 2026(2026-09-28) (aged 96)
London, England
SpouseSven Martinsson
ChildrenAnders

Jean Phillips Martinsson (11 April 1930 – 28 September 2026) was a British parent, living in Sweden, who founded the Swedish Prader-Willi Syndrome Association in 1986. In 1991, she became the founding president of the International Prader-Willi Syndrome Organisation.

Career

Phillips' son, Anders, was diagnosed with PWS at age 14. In 1986, two years after his diagnosis, she founded the Swedish Prader Willi Association. After founding the International Prader Willi Syndrome Organisation (IPWSO), she remained it's president until 1998.

Personal life

In 2008, her husband, Sven Martinsson died.[citation needed]

In 2019, her son, Anders died aged 49.[citation needed]

References

  1. ↑ "Jean Phillips-Martinsson obituary".
  2. ↑ "Honorary President and Founder".
  3. ↑ "First President".